Wednesday, February 13, 2019

Happy V-Day, I've got to give a shout out to my hubs. We as chronic illness people have a heck of a lot to deal with and sometimes we forget about our partners in crime. Believe me, it hasn't been all roses and rainbows over here, but I am blessed beyond words to have such a strong, hardworking and caring husband. He doesn't get enough credit...He has been the one to pick me up off the floor and the one to set me straight when I feel like I am at my wits end. Happy Valentine's Day everyone!!

Sunday, February 10, 2019

Blessed to have a symptom free day

I woke up yesterday like any other Saturday morning.  But for some reason before I got out of bed,  I said out loud "please let this be a good day". I didn't think much about my request after I got up. When I walked downstairs I noticed the intense bright light from outside, we had about 8 inches of  new fallen snow. This is extremely rare in the Pacific Northwest, it was absolutely beautiful. I sat down with my husband and enjoyed a yummy cup of coffee, then went for a walk together in the gorgeous snow. Perfect beginning of the day.
I remember specifically looking at the clock at 1 pm and thinking " I need to get lunch prepared", but then it hit me. "oh my gosh, I feel good today", "I feel like the old Jessica". I didn't want to jinx myself, so I tried not to think about it again.  Then the clock struck 5 pm and I was still feeling fantastic. I can't tell you how amazing it was to feel like myself. I wasn't going to let another single minute go by without completely enjoying my life. When you have this disorder you know that it can be months before you have a symptom free day again. At 9 pm, I sat down with my hubby again with a glass of wine and said to him "I am so blessed to have this day". It was absolutely perfect!! Remember you too can have this symptom free day. BLESSED!

Monday, February 4, 2019

"The wind blew this discomfort in and it may blow it out any moment"

By: Toni Bernhard

Wednesday, January 30, 2019

How to have a social life with a vestibular illness

Social life? I used to consider myself the life of the party...Whether it was a party, concert, bar outing, bbq etc!! I never had to stop and think about if I attended  a social event, was it going to be crowded? Was it going to be loud? Were the lights going to be bright? How long would the event be? What type of food would I be eating? Holy moly, are you kidding? The past, I would get ready and jump in the car and go. None of these questions would ever enter my mind.
Unfortunately, people with vestibular illness's have to think about all of these things in order to get prepared for an event. It sounds stressful, but it helps to think ahead just in case. Many of us become a lot more symptomatic if there are a lot of people, or the lights are too bright. And if the food has a lot of sodium it can cause symptoms to begin. If  you stay out too late, it can wreak havoc the following day. There are days that I miss just being spontaneous, but being prepared really helps.

Thursday, January 24, 2019

To be young again

 Gosh, remember the days of not having a care in the world? Actually, I take that back..I cared about my my cabbage patch doll, my big wheel, my florescent light up hot pink phone. Wow, those were such simpler times. Ever since this illness began I often find myself daydreaming about my childhood. I was extremely blessed to be given the best parents in the world and a fun, caring brother ( I didn't think this of my brother when I was real young) but today we are best friends. I sometimes long for those days when my biggest worry was, I wanted to make sure I got home in time from school to play outside. And it was always warm and sunny in my early memories.  It kind of made me sad...Why am I sick now? Why can't I let these worries go? How long is this illness going to be with me? But then, I look into my sons eyes and I realize this is his innocent time..These right now are his early memories that he will always look back on. Yes, there are days I can't get out of bed, or days I can't make dinner, but I will tell you, this damn disease will never keep me from making wonderful memories for my son. I have learned to be honest with him throughout this journey, and I think it has helped him not worry about his Mom so much. We laugh each day together, we dance each day together and each day I tell him how much I love him. And for that, it makes my today pretty darn special. I am blessed to have this kiddo and this disease will never change that.

Beginning symptoms of a Vestibular illness

The vestibular system includes the parts of the inner ear and the brain that control balance and eye movements. If the system is damaged by a disease, aging, or injury, vestibular disorder can result, and are often associated with one or more of these symptoms :

vision disturbance
hearing change
cognitive or psychological change

by, VEDA

Monday, January 21, 2019

"Don't be ashamed of your story, it will inspire others"